When people begin looking for care for older adults, they become exposed to many labels. Words like “independent living,” “assisted living,” and “nursing homes” are tossed around, often interchangeably and imprecisely.
In fact, while there are many “levels of care” available for older adults seeking housing options, understanding those levels is only part of what people need to understand in order to make good choices. To fully understand senior housing options, people need to recognize that this is an industry and, like most industries, the options they are being offered are shaped by the business models of the companies that own these facilities.
Businesses that own buildings in which older adults are housed have chosen to be licensed or unlicensed, and have also decided whether their facilities will or won’t be structured to allow residents to access government benefits like Medicaid. These business decisions determine the level of regulation to which they are subject and shape the care choices families can expect from them. What’s more, the nice people that show family members around these buildings and who explain how things will work, are salespeople. Their primary job is to keep as many of those rooms filled as possible, and to make promises and representations to families as needed to accomplish that one fundamental objective.
As an example, let’s look what we know about the place where Virginia was living.
Virginia’s family chose to place her in an “independent living” residence (a decision that the trial court found to be significant in allocating blame between the family and the facility). Essentially, this meant that Virginia rented an apartment which also provided her with some meals in a cafeteria and other services, such as laundry. But it’s helpful to know that on the other side of the same building, owned by the same business entity, there were other apartments for people who had higher care needs. Those apartments were more expensive, but came with “enhanced” services, including caregivers and greater security arrangements that, had Virginia been living there, might have avoided her tragic death.
It is also telling to understand that even though Virginia was a resident of the independent living side of this complex, she was receiving assistance with her dementia needs from outside caregivers, and that the people who managed the independent living section of the building maintained a list of such vendors which they gave to residents who needed help remaining “independent.”
In addition, prior to her death, Virginia’s dementia had become so pronounced that she was disruptive in the cafeteria on the independent side of the building, which was addressed by having her take her meals on the assisted living side of the building or in her own room.
Finally, on more than one occasion, the people managing the independent side of the building had to call Virginia’s caregivers to the lobby to have her taken back to her room, when it was clear that Virginia was confused about where she was.
The point of all this is that the labels businesses place on these housing options are often misleading. People are told every day that if they place their parent in this “independent” apartment, that they will be allowed to bring in additional care as their care needs increase, and that the facility will provide contacts to the families to facilitate this arrangement. To suggest that all (or even most) older people who live in facilities that label themselves “independent” can in fact live independently ignores the reality of this marketplace.